Media Releases

19 November 2010:  VIC PNH community seeking State intervention

18 November 2010:  Plea for life saving treatment finally heard

17 August 2010:  Central Coast star’s rise cut short

29 June 2010:  Brisbane mother forced to watch daughter die

16 June 2010:  Maclagan man denied life-saving medication

20 May 2010:  Australians living with ultra-rare blood disease facing uncertain future

11 May 2010:  Federal Budget fails patients suffering life-threatening disease


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