Welcome to the PNH Support Association of Australia, the only organisation dedicated to Australians with Paroxysmal Nocturnal Haemoglobinuria (PNH).

Our aim is to support PNH patients and their loved ones to manage their condition positively by providing access to accurate information, practical resources and a support network. We also provide opportunities to meet with other patients and caregivers to reduce the isolation often experienced by people with rare diseases.