The only effective treatment for PNH, Soliris ® (Eculizumab) is available in over 30 countries worldwide, yet despite the Pharmaceutical Benefits Advisory Committee recommending it for funding through the Life Saving Drugs Program in March 2009, the Government has still not provided access to the 86 Australians with PNH, some of whom are likely to die if they do not have access to treatment soon.
We are asking the Federal Government to take all necessary steps to urgently provide this life-saving treatment to Australians.
WE NEED YOUR HELP!
Please show your support by signing our petition. Signatures on paper petitions are the best way to tell the Government how we feel.
Please print the petition and gain as many signatures as you can. Principal petitioner details and original signature for each page are required but will never be published. Please use a new sheet once 13 names and signatures have been collected.
Printable version of petition: PNH Petition.pdf
We are also running an online version of the petition. Please circulate this link if you are unable to collect signatures:
Please return completed petitions by 13 August 2010 to:
The Public Officer
PO Box 472
SOUTH YARRA VIC 3141