Prime Minister Julia Gillard responded to a letter from 29 year old PNH patient Jenny Sturrock, who pleaded for the PM to fund Soliris to save her life and the lives of the 70 or so other Australians with PNH needing effective treatment.

Ms Gillard said she was “very very sympathetic” to Jenny’s circumstances and went on to say:

The Minister for Health has sought further urgent additional advice from those very experts [the PBAC] to inform a decision about supporting Jenny and about this drug. We need to get the benefits of that expert advice and that’s been called for urgently”.

Should Labor return to power, hopefully they will make the same commitment received from Tony Abbott.  Read more

11 August 2010